I am so glad that i found this website. I was diagnose in Oct 2010 with ovarian cancer and was staged at 1c but after 6 months of chemo and deblking they reallized that i was staged incorrectly. I am actually a stage 111c. I was devasted and then they told me that i needed more chemo. I just finished my 4th treatmnt and had a reaction to the coplatin so they said that there will be no more chemo for 3 months. I would like to find a group that i can attend. God bless you all. This a difficult fight but I plan to beat it. I have a 12 year i would like to see grow up.

I was diagnosed in July 2009 with stage 111 C ovarian cancer. My CA-125 pre surgery was over 25,000 and today after 8 cycles of chemotherapy is 12.6. I am stll scared every time I get my blood work done but trying to stay strong.

I was diagnosed with ovarian cancer stage4 july 2009. My ca-125 was over 600 before surgery. Had to have complete hysterectomy and my slpeen was removed as well.- I didn’t know you could live without your spleen.- After surgery my ca-125 was 208 . After 6 months of chemo every week my ca-125 is now 12 and i am in remission. So far so good. Thank the lord!

After nearly a 7 year battle, I just lost my mother to Ovarian Cancer. Mom was very active in OCAF Volusia/Flagler County and at her request before leaving this earth, Mom asked me to step in her place. It is an extreme honor to join this group and I am so much enjoying the new friendships with all of my Mom’s “teal ladies”. I only hope and pray that I can make a difference somehow. Thank you for all you do. Together, I know we can take a stand and beat this disease!

I was diagnosed with ovarian cancer stage 3C and had my surgery on Sept 10 2009. I am getting chemo and have only 2 treatments left. I hope this is all I have to have. I am worried as I have a 12 yr old girl and I want to see her grow up and go to college and get married and. I just worry if the carboplatin and taxo is working to kill this. My ca-125 when diagnosed was 364 then after surgery it went to 25 then after 1st chemo, down to 11 now only 10 I feel it should have gone down lower. Also still healing from surgery trying to get incision to heal it is very stubborn It has gotten smaller though.I got a post op infection in my staples. I wonder alot of how long I will live and that haunts me and also will it come back?I need alot of prayers thanks for this website.God Bless all of us!!!!!!!!

Please consider visiting the new OCAF Facebook page - and Become a Fan!

Hi Bonnie,
Just sending you prayers & good wishes. Thinking & praying for you always.

Much Love From
“The Butterfly”
Sheron Cook
OCAF website is GREAT, see you at our big luncheon!

Ihave recently been diagnosed with stage IIIC Ovarian cancer. Ihad a totalhysterectmoy and beklking procedure in late July. I just started my 4th cycle of IV Taxol and IP Cisplatin and IP Taxol. So far my CA-125 prior to surgery was over 25,000 and after the third cycle it is now only 147.8. I am pleased that the protocol is working as chemo is a living hell. I have neuropathy and other side effects. I keep my spirits high because I know I will win this battle. I was hoping to find a local support group as my family is wonderful but I need to talk to others going through this.

This is a fabulous website. I have a very dear friend who had ovarian cancer and braved this horrible disease. She is an outstanding advocate, for a cure for Ovarian Cancer. And, I have loved ones who have fought the battle of their life against cancer. My mom succumbed to pancreatic cancer but only after a hard fought battle. Sort of like Patrick Swayze. She was 81 and one of the bravest people I have ever known. My sister is currently fighting for her life, from breast cancer, the second time around . She is another of my heroes as is my mom and my friend Marsha. Football players, and movie stars are not heroes. (although I enjoy watching both) Those who face head on the “C” word are our heroes. How frightenting it must be. Hats off to all of you. I pray every day for a cure for all cancer. Prayer is powerful. Join me. Mama, Judy, and Marsha, you all have made a difference and I love you all to infinity.

loved your golf tournament 9/27/09. and like the website. in loving memory to my wife cathy mahoney who fought ovarion cancer almost 5 years, and passed away 5/29/09.

Awesome website and organization. I look forward to hearing from you soon and being able to volunteer and raise awareness.

In loving memory of the strongest woman I ever knew: My mother, Pamela J. Fogle

She fought ovarian cancer for 13 years!!
She’s been gone now for almost 3 years and I still miss her with every breath I take. I pray that one day there will be a cure and no other child will have to lose there mother like I did!!

Great website for a great cause - here’s to the fight against OC - we send out a Lindi Shield of appreciation!

Wishing a wnd would blow away cancer and make it all go away.

Mrs.Wenche Abd Al-Aziz

I am so happy to find this website. I am interested in participating in upcoming events to support this cause.

Just participated in the 1st annual teal ribbon run and it was awesome!!! My husband and i walked for his mom Mary who is currently battling ovarian cancer. Would have liked to have brought her along, but she’s recovering from another bowel resection for cancerous adhesions. She is the toughest woman i know. We will definately make this a yearly event…i hope to be able to run it next yr!!!!

In memory of Barbara Barnecott who lost a courageous battle with Ovarian Cancer March 4, 2009

Very nice website. In support of my sister, Paola, who was diagnosed with Ovarian Cancer in January 2008.

The life of a truely brave woman and how she handled ovarian cancer for 14 years

Thanks for the providing good information - this is really helpful information about Ovarian Cancer Treatment .I found another good one that helped me find a great website For Ovarian Cancer Treatment, which helped gave me further information about this.

I was just reading thru comments and to my surprise I saw a comment from my daughter Oct 11, 2007. I did go into remission. But it,s back…DARN IT ALL! I’ll just have to Whoop it again!

Hey, really good site and best of luck!

I received a children’s book in the mail that helps children come to terms with a parents cancer. It’s aimed at younger children and is both thoughtful , warm hearted and even get’s the kids to help out more around the house. The author Linda McCowan is also the illustrator and you can buy her book “Cancer Rhymes with Dancer” by going to her website at http://www.cancerrhymeswithdancer.com.

My kids read it and loved the illustrations, several which are shared on that author’s site. Mel Wilson

I’m 27 and was recently diagnosed with Ovarian Cancer. Your website has provided so much information and knowledge for me. Thanks.

My aunty have cervix Cancer ( for 4 years and Im so proud of her. Her faith in God, strong person. Titi Monse I love you and you always on my mind. Keep it up!!

You site very good and interesting . Thanks and sory
aptc
sory
sory

hi i’m angie i’m 9 i have seen so many things envoling cancer i don’t have cancer thank god but so many people do and it brings me so much joy to see that people in this world have set aside some time to help people people they don’t even know it truely touches my heart god bless you all!

Hi all. Good website and nice comments ;)) Happy day

You site very good and interesting . Thanks and sory
fl
sory

sory

http://www.geocities.com/sherriecastaneda57/

I want to thank you for all the awareness that you promote! My grandmother passed away in 2005 from Ovarian Cancer. If only she’d have noticed the symptoms sooner…. she’d still be here. Here’s to OC Awareness!

Dear OCAF, I am Jeannette Preston,founder of the PANTS organisation in UK which aims to raise awareness of gynae cancers in the pants area. You have such a good website I would like to put a link from mine to yours and hope this is ok with you with kindest wishes and joining with Kath Mazzella in Australia who has vulval cancer, I have endometrial cancer, to make Sept 10th International Gynae Awareness Day kindest wishes Jeannette http://www.pantsmatters.org.uk

My girlfriend (in Germany) of 42 years passed away on Jan. 31 2008 of ovarian cancer, dispite me preaching to her of all the symptoms, being a 6 year survivor myself. Was misdiagnozed for many months until it was too late. Socialized medical care cannot compare to what we have in the USA. Costly yes, but is there a price for survival?

Hey ladies! So great to see that OCAF is making great strides year after year! I’m so proud to have worked with you for so many years, and I miss you dearly. Sending you lots of love from chilly NYC, Melissa Witek

I commend you in doing something as wonderful as this. My sister died in 2005 from Ovarian Cancer at the age of 50.

Thank you for this valuable information that I will pass along to my friends and family.

am a 4 year survivor of stage 3c ovarian cancer. I had an optimal reduction and 8 cycles of carbo and taxol. I am currently in a 5 year clinical trial at Moffit in Tampa for a drug called OvaRex. It is a monoclonal antibody. I have had no recurrences and am lucky to have had the best of everything (care,support, etc.)during my surgeries and treatments. This is a great website. I wish there was an organization like this near me that I could get involved with and volunteer with.

My mom was diagnosed in Nov. 2005. Two years and counting……. remission this November!

Hi Bonnie and Gals, How about that new ButterflyBallet website?! Thanks to all of you for the encouragement & help you have given my brother, Mike this year. You have been so kind. Blessings to all, Marcy Maixner McMullan

I was diagnosed with ovarian cancer in April of 2005 by our family doctor. The CA125 was what helped him to make that diagnosis.

My Grandma just lost her battle to ovarian cancer on Sep 6th, 2007. She was 69 and the strongest person I’ve ever known. To watch her go through it was heart wrenching and I just wanted to say I appreciate everything you guys do.

Please come to Virginia or What orgazations are involved in Ovarian Cancer.

Caregiver for 79 y/o Mom who was diagnosed 4/05 with Stage 3C OC. Has been undergoing chemo (4 diff. types) for over 2 years. Not meaning to be so negative, but can someone give me some idea on what to expect during her final stages should her chemo not be effective…i.e. what symptoms will she have, etc. Thanks for your help!

In memory of Hildegard Smith.

Thank you All so very much for this wonderful site. I will keep in touch and will get in touch with what I should be doing to help you all. Also The Teal Magnolia Luncheon was wonderful and great fun & I can’t wait until next years event. Thanks to all. God Bless, frm Sheron

Thank you for the wonderful web site. I met Bonnie at the Alliance Conference in Sept and was very impressed. Wish you were closer to me so I could be more active. I live in Broward Co and also have a home in Highlands County. Anyone wishing to get together for lunch in these areas, please contact me. I was diagnosed with OC Jan 2, 2006 and have been cancer free for about 6 months now. Thanks Again Liz

Ovarian cancer survivor but am battling recurrent uterine cancer, am strong and faithful that i will overcome this. Praise Dr. Finkler and our Lord and chemo room nurse. my angels

Keep up the good work!

My dearest friend Patty Sebast lost her couragous battle against oc last night October 3, 2006. Ironically enough, she died on Teal Tuesday - I began this about 3 weeks ago - maybe others would be interested. Every Tuesday, I and anyone else interested wears teal in honor of Patty and all of the other women facing oc and to raise awareness of this disease. Do you ever come to the Bradenton area?

My mother passed away from Ovarian Cancer 3 weeks ago. Let us continue to fight not only for better testing, but most definitley a cure!!

I’m 57 and am fighting my battle undergoing treatment at Florida Hospital Cancer Inst. for ovarian cancer, diagnosed on 5/31/06. I want to help get the word out about the need for better testing. I especially think it’s necessary for doctors and patients to have a better awareness of the CA125 test regarding the high percentage of false readings. 18 months ago a cyst was found, I went for the ultrasound, had the CA125. My doctor’s office called and said the test came back negative. I thought I was good to go until my next annual gyn visit. Then the cyst had grown to a mass, the CA125 still came back negative. My husband decided to do a little research on the CA125 then, and found that yes, it is the only test available, but that it had far from accurate results. Surgery revealed the nasty truth. I thought I had done everything right, but if I had known more about the CA125 I would have had additional discussion with my doctor at the time of the first test and asked to see a gyn oncologist for a further opinion. Now, I’m a stage 3c and fighting for my life. I want to win this battle, and I believe God has a plan for me in this to spread the word. More information needs to be given on the ovarian cancer websites, and info pamphlets should be available to anyone prescribed to have the CA125 test. So, how can I help to get the word out? Of course, I’d love to hear from anyone who is a survivor from this stage, or who is going thru treatment now, and hear about how you won or plan to overcome this disease. I’ll look forward to being an active member of the OCAF.

I saw your organization on a magnet sticker on someone’s car while driving. My mom died of Ovarian Cancer at 70 years old this year on 1/17/06. It’s been very tough without her. She died a painful death. I wish I had known of your organization sooner.

In Memory of my mother, Carol A. Moran, who died April 29, 2006 after a long battle with primary peritoneal ovarian cancer.

I found some general information on this site. I also submitted a message about my cancer which I hope will be answered.

I had breast cancer in 1998. My ca125 just elevated from mid-normal to high-normal. Had an ultra-sound which was normal. My husband has colon cancer and is going through his 3rd six months of chemo so I guess I was frightened at the thought of me having cancer again. Good web site. Thanks

Ovarian cancer survivor. Diagnosed in May of 2004. Went through chemo. Now back to work and cancer free.

THANKS!

Joan has Stage IIIC. Please send advice. Operated on this past Thurs. Awaiting Lab results.

Hello. I am a newly diagnosed ovarian cancer fighter (as I like to say). I am 31 years old. I have had my surgery and I am in chemo right now. I think this is a great organization and I would like to know if I could get any information about you guys. I live in the Daytona Beach area and would like to do anything to help or be involved. Thank you

Hi I was at the Teal luncheon and was a good friend of Judy Murphy. I loved the speech by Miss Florida and want to find out where she got the information on Ithzak Pearlman. Could you please send me her email or give mine to her…Thanks It was a great luncheon…Karen and Thanks

I was diagnosed with ovarian cancer in 2003 and had a reoccurance in 2005. I am currently going through chemotherapy.

Bonnie, Bless you for leading this mission………Karen

In loving memory of my mother, Jeane Meyer, who lost her battle with ovarian cancer on June 4, 2002.

I would like some information on your support groups, especially ovarian cancer groups.

Thank you for a helpful website.

In support of my sister, Emily Peters, who was diagnosed with Ovarian Cancer in July 20004. She is now in remission.

OCAF was blessed when God sent you to us! Thank you for your continued time an effort! I will send you a note tomorrow with comments about the site! But to begin with it’s fantastic!!!! Love you, Bonnie

Welcome to the new OCAF web site! I hope you enjoy surfing our pages. Please feel free to contact the office with any questions or comments you might have. And remember, UNTIL THERE’S A TEST, AWARENESS IS BEST! With love, Melissa Witek (Site administrator)